Willie Geist Recalls His “Most Proud Day” Amid Dad’s Secret Parkinson’s Battle

For over three decades, Bill Geist, the esteemed journalist and father of NBC’s Willie Geist, has courageously battled Parkinson’s disease. Diagnosed in 1992 at the age of 47, Bill kept his condition a secret for many years, even from his own children. It wasn’t until 2012 that he publicly revealed his diagnosis on CBS Sunday Morning, a moment that Willie Geist describes as his “most proud day.”

Bill’s decision to share his story was not easy. He feared being perceived as “the sick guy” and wanted to protect his family from worry. However, by going public, Bill opened the door to greater awareness and understanding of Parkinson’s disease. Willie recalls how this brave act marked a turning point, not only for his father but for their entire family’s mission to support Parkinson’s research and advocacy.

The Impact of Bill Geist’s Courage on Parkinson’s Awareness

Bill Geist’s openness about his Parkinson’s diagnosis inspired Willie Geist to become a passionate advocate for the disease. Since his father’s announcement, Willie has dedicated himself to raising awareness and funds for Parkinson’s research. He serves on the Board of Directors for the Michael J. Fox Foundation for Parkinson’s Research, a nonprofit organization founded by actor Michael J. Fox, who has lived with Parkinson’s for over 30 years.

Together, the Geists have worked tirelessly to highlight the challenges faced by those living with Parkinson’s. Bill has been an active member of the foundation’s Patient Council, while Willie participates in the American Academy of Neurology’s Brain & Life community. Their combined efforts have helped shine a spotlight on the disease and the urgent need for a cure.

Advocacy and Personal Motivation: Willie Geist’s Journey

Willie Geist’s advocacy goes beyond board memberships and public appearances. He has taken part in marathons, including the New York City Marathon, to raise money for Parkinson’s research. In 2021, Willie shared on The Tonight Show with Jimmy Fallon that his marathon efforts raised approximately half a million dollars for the cause.

During the grueling race, Willie found motivation by writing “Dad” on his arm, a constant reminder of why he was running. This personal connection fueled his determination to push through physical and mental barriers, knowing that his efforts could help future generations affected by Parkinson’s.

Strengthening the Father-Son Bond Through Advocacy

The Parkinson’s journey has brought Willie and Bill Geist closer than ever. Despite the challenges of the disease, Bill continued his journalism career for 25 years after his diagnosis, demonstrating resilience and dedication. His memoir, “Lake of the Ozarks,” released in 2019, is a testament to his enduring spirit and creativity, even while living with Parkinson’s.

Willie often reflects on the lessons his father has taught him—curiosity, perseverance, and the importance of embracing life’s adventures. Their shared mission to combat Parkinson’s has deepened their relationship and inspired Willie to be vulnerable and open, especially as a father himself.

Continuing the Fight: Raising Awareness and Supporting Research

Willie Geist uses his platform on NBC’s TODAY show to share stories of individuals affected by Parkinson’s, fostering empathy and understanding among viewers. He has engaged in candid conversations with celebrities like Ryan Reynolds, who opened up about his father’s 20-year battle with the disease, highlighting the stigma and silence that often surround Parkinson’s.

By bringing these narratives to light, Willie helps break down barriers and encourages others to seek help and support. His efforts emphasize that Parkinson’s is not just a medical condition but a human experience that requires compassion, research, and community.

How You Can Support Parkinson’s Research

The Geists’ story is a powerful reminder of the importance of advocacy and funding for Parkinson’s research. Supporting organizations like the Michael J. Fox Foundation or participating in awareness events can make a significant difference in advancing treatments and ultimately finding a cure.

Whether through donations, volunteering, or spreading awareness, everyone can contribute to this vital cause. Willie Geist’s journey exemplifies how personal experience can transform into meaningful action that benefits countless others.

Conclusion

Willie Geist’s reflection on his “most proud day” — when his father Bill Geist bravely revealed his Parkinson’s diagnosis — highlights the power of courage, family, and advocacy. Together, they have turned a private struggle into a public mission to raise awareness and support research that could change lives. As Willie continues to honor his father’s legacy through his work and personal efforts, their story inspires hope and action for those affected by Parkinson’s disease.

If you or someone you love is impacted by Parkinson’s, consider joining the fight by supporting research foundations or sharing your story to help raise awareness. Every step counts in the journey toward a cure.